Tampa Bay Resident to Discuss Rare Genetic Condition

A Tampa Bay resident and a national expert will discuss a rare genetic condition that is often mistaken for severe allergy during a free event.

The United States Senate recently passed a resolution recognizing the first ever Hereditary Angioedema Awareness Day on May 16, 2012.

Hereditary Angioedema (HAE) is a condition characterized by spontaneous episodes of edema or swelling in the face, feet, hands, throat, and abdomen.

This potentially life-threatening condition can be misdiagnosed for years and mistaken for severe allergy, making life for those who live with it difficult and unpredictable.

Laura Milford, a Tampa Bay area resident living with HAE, and Dr. Robert Chrzanowski of the Allergy Center at Brookstone in Georgia, will discuss the causes of HAE, its symptoms and treatment options from 6:30-8:30 p.m. on Monday, May 14, at The Capital Grille Restaurant, 2223 N. Westshore Blvd. The event is free and open to HAE patients and their families.

Since Milford was diagnosed four years ago at age 50, she has become a dedicated local HAE advocate taking steps to increase awareness of the disease.

While HAE is a hereditary condition, some people have no knowledge that it exists in their family. It is important for anyone who believes they may have it to explore a proper diagnosis.

For more information about HAE, visit www.HAEHope.com. For more information about HAE Day, visit www.haeday.org.


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